Every year, March 21st is World Down’s Syndrome Day. Here at Extra-Ordinary we concentrate on sharing the reality of Ordinary life with an Extra chromosome,and what great quality of life families like ours can, and do, enjoy. So, throughout March, on the run up to WDSD16, I will be sharing photographs that demonstrate what quality of life means to us. Please join in and share your #qualityoflife photos on Instagram, Twitter, and Facebook, or in the comments – don’t forget the hashtag #qualityoflife. Thank you.
Grandparents have to be among the biggest influences on a young child’s life, and also provide a valuable connection to the extended family, and the family’s past: and Freddie enjoys a fantastic relationship with his. It’s a two-way street – not only does he benefit from their experience, their different perspective, and their nurturing (and lots of treats), but they benefit too, from all the joys that come from watching their child’s child grow and develop their distinctive character. I am convinced that Freddie is part of the reason my dad made such a good recovery from the stroke he suffered four years ago. Freddie has shown them that everything they thought they knew about Down’s Syndrome was wrong. In the eyes of Nanna and Grandad, their grandson is simply ‘Extra-Ordinary’ (what grandparent doesn’t?).